In 2019, Cai Lei—a former executive at a leading e-commerce company in the Chinese mainland—received a life-altering diagnosis: amyotrophic lateral sclerosis (ALS), a fatal neurodegenerative disease. Instead of stepping away, he leaned in.
Harnessing his tech-savvy background, Cai launched a big data research platform for ALS. The initiative pools de-identified patient data – from medical records to genetic profiles – to uncover patterns that could speed up breakthroughs.
Recognizing the urgency of research materials, he also championed a body donation program across the Chinese mainland, persuading patients and their families to contribute to science beyond their lifetimes.
Global collaboration is at the heart of Cai's strategy. He's teamed up with more than 100 top international experts in neurology, genetics, and drug development, creating a cross-border network that accelerates experimental treatments.
Today, Cai's initiative stands as a testament to how technology and community can spark real-world impact. For young innovators, entrepreneurs, and changemakers around the world, his journey is a reminder: even in the face of a fatal diagnosis, determination – backed by data – can fuel hope for thousands fighting ALS and redefine what is possible.
Reference(s):
cgtn.com
