Every year on Global ALS/MND Awareness Day, Health Talk shines a spotlight on amyotrophic lateral sclerosis, the incurable neurodegenerative disease affecting muscles and mobility. In this special edition, we follow Cai Lei, a former executive at a leading e-commerce company in China, as he embarks on a race against time\u000areboth in his personal battle and a mission to spark hope for patients worldwide.
After his diagnosis, Cai Lei shifted gears from boardrooms to hospital rooms. Known for delivering results in the fast-paced world of online retail, he now applies that same drive to raising awareness. "Time is my most precious resource," he says, reflecting on the urgency that drives his advocacy.
Cai Lei's approach blends personal storytelling with practical action. He hosts virtual roundtables, sharing insights into daily life with ALS, from tracking muscle strength to navigating healthcare systems. By collaborating with tech innovators, he explores wearable devices that monitor patient mobility in real time\u000aa nod to his background in tech-driven solutions.
Beyond technology, Cai Lei fosters a global community. He coordinates peer-support groups across time zones, connecting patients, caregivers, and researchers. Through translated webinars and social media campaigns, he ensures that conversations reach diverse audiences, from young digital entrepreneurs to changemakers examining human-rights frameworks in healthcare.
On Global ALS/MND Awareness Day, Cai Lei reminds us that hope can be engineered: "Every story shared, every tool tested, brings us closer to breakthroughs." As we mark this day, his journey underlines the power of resilience, innovation and collective action in the fight against ALS.
Reference(s):
cgtn.com
